working to improve care for people living with:
Living with Fibromyalgia (FM), Multiple Chemical Sensitivities (MCS) and/or Myalgic Encephalomyelitis/Chronic Fatige Syndrome (ME/CFS) is challenging. Each is a complex multi-system disorder with many possible symptoms and people with one of these conditions often have many symptoms associated with the other two.
Each is a recognized medical condition; however, getting diagnosed can be difficult. Not enough doctors in Ontario are familiar with the conditions despite the fact they afflict at least 600,000 people living in Ontario.
CareNow Ontario’s mission is to provide people living with these conditions with up-to-date information about care, and treatment while pressing the government of Ontario to expand access to that care.
If you are seeking medical help you are not alone. There is one clinic in Ontario and the wait time to see a doctor there is three years. We are working hard to change this but the government of Ontario is not cooperating. It has approved a plan to train more doctors and fund more clinics. It just won’t implement that plan.
CareNow Ontario was instrumental in developing that plan.
In the meantime a new set of clinical tools* has been created to help your family doctor diagnosis and treat ME/CFS and Fibromyalgia. You can help your doctor provide you with better care by bringing to their attention these clinical tools that have been prepared by the (Canadian) Centre for Effective Practice or CEP.
Links are provided under: Actions you can take (below).
No such effort has been undertaken to help those with MCS which is frustrating since the condition does appear to respond to treatments that are not available here in Ontario.
A clinical tool is any resource, instrument, or document used by healthcare professionals to support the assessment, diagnosis, treatment, or management of patients based on the best available evidence.
Clinical tools synthesize current medical evidence so clinicians can make faster, more informed decisions —especially at the point of care (i.e., right at the patient’s bedside or during a consultation). They are designed to reduce medical errors, standardize care, and ensure treatments align with up-to-date research.
Clinical tools provide doctors with reliable information that bridges knowledge gaps —gaps that emerge more quickly and more frequently as the practice of medicine become more complex.
If you or someone you care about has one of these conditions you should be on our radar. Join our mailing list. Numbers matter. The more people who demonstrate an interest in these conditions the more likely the government is to invest more in providing proper care.
If you are looking for medical help bring the CEP tools to the attention of your family doctor.
CEP tool for fibromyalgia
CEP tool for ME/CFS
Join with us to bring about change.